Wednesday, 8 June 2016

Living with Dementia

Quick posting - because I think this will get taken off YouTube in a few days.

Very good BBC documentary about a UK family living with dementia, the makers followed them over 18 months and shot footage in their home etc. The husband and wife and their children talk so beautifully about living with this disease.

If you have time - check it out!

Living with Dementia.


Monday, 6 June 2016

Weekend duties.

Weekend is the time to catch up on life - Oyomesan duties too.

Amid the gardening, eating, TV, cat playing, laundry, Adam Lambert latest video watching....

Last week was cold, windy, wet weather and Okaasan didn't go out at all. So, Saturday lunchtime - still cold and wet - I took her to the nearest shopping complex and attached her to a big strong trolley because her legs were definitely weak  from all the sitting down.

We walked round home furnishings, via pet foods, thru kitchen supplies...and on into the supermarket. Several laps of fruit and Veg, then a spring thru fish...and pondered the meaning of choice in the snacks department...


After that: bought some of her fave sushi and came home for lunch a deux.

Dear Son and I were out in the evening at a city-wide Tapas event, with discount tickets going from restaurant to restaurant with food and drink along the way. A glorious festival, sadly in its last year.

Sunday was finally good weather. We sent Okaasan out walking about 3 pm...she came home around 6 pm...obviously tired and a bit mixed up on understanding things. I wonder how much longer we can let her go off walking alone? She can find her way home ok, but she doesn't have the judgement to know when too far/long is too much. Walks until shattered. Our life will REALLY change when we have to escort her out every day..

Then this morning: major toilet accident. Had to clean the toilet mat, Okaasan's slippers, the hallway floor...and throw away the pajama bottoms...which were too awful to contemplate. Yuk.
Such is life. Not sure why the accident: we only had fish for dinner last night. It may be that she ate too many snacks: on Saturday she bought 3 bags of snacks and has practically eaten all of them in 72 hours.

So. Okaasan's summer starts. Hopefully more walking and exercise.



Thursday, 26 May 2016

Question. Reply. Question. Reply....Question...

Agggghhhhhh morning....

Okaasan has a bee in her bonnet - and excellent phrase for dementia - about the prepaid card for elderly subway users.

For some reasonTHAT is her worry of the moment. Yesterday. And again this morning.

Driving us nuts.

She worries that the pass is out of date or can't be used. That she must buy a ticket.
Doesn't matter how often we say: "No, the card is fine. Just put it in the ticket gate. Don't buy a ticket. You never need to buy a ticket".

On and on and on and on.

Finally we wrote out the above phrase and taped it and the prepaid card together. Gave her both and closed the door of her room. She is there now - looking at the Tv- and then glancing back at the card/handwritten note in her hand...and away again - on a 1 minute or less cycle.

Aghhh....he has escaped to work. I will shortly. Okaasan may start asking the cats for their advice when we are gone.

Oh the stress. For all of us.

Sunday, 22 May 2016

Family day out




There we are - happy family. Mum and son.
Down the Lilac Festival, with beer, oysters, tempura, snacks and sunshine.
Perfect day out.

We took Okaasan downtown by subway - having the whole "buy a ticket/how to use this electronic pass?" conversation and noticing how weak she is climbing the subway steps. each footstep ALMOST catching its toe on every single step.
Then  walking thru the park in the crowds and sunshine, hand in hand. 
Settling her in a nice shady place while we got food, then sitting watching the world go by.

I think Okaasan enjoyed it. She ate lots and commented on things around her.

We included carefully timed stops at toilets along the way. Sit down points. And came home by streetcar and taxi. All done by 2 pm.

The noisy apartment breaking work was ongoing...so I closed Okaasan's windows and put a fan in her room. Not enough.

By 3.15 pm she was saying:"Can I go out? Did I go out this morning?"

We managed to dissuade her with cups of tea and encouraging chat. She IS amazingly strong for 85, but two outings in hot sunshine is probably enough.


Anyway. Happy day out.

* Have to see if the clothes repair shop can shorten Okaasan's trousers. She now wears the waistband under her armpits and the bottom of the legs are dangerously on the ground. She must have shrunk....

* Cat and Mouse hell - that season has started again. Popo bringing home live presents. I had one mouse climbing onto the printer while I was sitting her on the computer, I found a 2nd dead in the shoe box when I took out my work shoes and this morning we had a 3rd alive in the bedroom at 2 am. I decamped to the sofa to sleep (with the cat who thought he'd done enough) - and I left Dear Son/Boyfriend sleeping in the bedroom with the window-escape route hopefully open. 
Didn't work - at 7 am we had to take all the rubbish out of the bedroom (it will make us clean it) and DS caught the mouse in the laundry basket.

Life. Full of joy.