Monday, 26 June 2017

Is this the best we can do?

Shackled to a bed.

Okaasan is tied to a bed in a mental health hospital, on drugs to control her moods.

We are having serious doubts about this. 

DS gave the hospital permission to use restraints at the start, because we were all worried that Okaasan would get up in the night and fall down - damaging her spine or other body part again. It was for the best care.

But now? She is in a room alone. The door is locked. And there are foot and arm restraints.
Is this the best that a Japanese mental health hospital can do with an 86 year old who suffers from dementia?
She isn't a danger to other people, maybe there is a risk to herself if she gets angry about the locked door or something in the room. But, restraints?

DS is calling the hospital today and hoping for a doctor meeting later this week.

We feel awful. Guilty. Is this the best way?

Surely there must be a better way to put an 86 year old on mood controlling drugs in a safe environment? She was shouting and angry with people and things. She threw things across the room - but she wasn't running amok in a public place with a carving knife.

If I were tied to a bed in a locked room, with no TV or magazines I WOULD BE ANGRY TOO.

It's all shades of every mental health care scene I've seen in movies, Jack Nicholson in One Flew Over the Cuckoo's Nest, or the recent Silver Linings Playbook. We are the family unfamiliar with all of this....and Okaasan is depending on us to make good decisions for her.

Oh. I don't know. She can't be at home shouting and throwing stuff at us, a care home doesn't want her until she is calm and careable....and this....is this the best we can do?

Friday, 23 June 2017

Holding pattern...

This family drama is in holding pattern - circling the airport, peering out the windows...wondering when we'll get permission to land...or whether we'll be redirected to another airport.

Okaasan in the mental health hospital, taking drugs to calm her down.
Dear Son visiting a few days a week.
Me staying away enjoying my life.

Dear Son thinking that he is going to wait and see what happens with her brain - and whether he can waltz into the hospital one day (or if she comes home) and give her papers to sign which will mean her home for 40 years will be sold.

He seems to think that might be an option...still.

Thankyou for advice about becoming legal guardian - two readers who know me in real life have contacted me to offer advice. Dear Son has done his research and talked to the real estate agent. There apparently isn't a big rush on the house sale because the buyer is a developer, not an individual. 
Delay on the papers doesn't mean a family is homeless, just that the development company can't start house demolition and site clearing as quickly as they hoped. Becoming a legal guardian would take a month or two - so DS is going to wait.

Wait and see: will Okaasan calm down enough to be able to cope with this topic and accept and sign?

This week she was calmer on his visit. Still angry about the nurses waking her up too early, but chatted with her son about things in a reasonable way. He came home a little relieved. We continue our Life Without Okaasan - eating random food we like, even planning a small BBQ with friends...alternatively happy in our life, and guiltily remembering Okaasan's enjoyment in things.

Wait and See.

Monday, 19 June 2017

And then....

First of all - that's a picture of my weekend :-)

Rented a bike in a mountain village and cycled for 5 hours. Saw flowers, listened to birds, ate icecream, met a wood sculptor, got sunburned.

Also enjoyed time with my man : homemade hamburger in the garden, sushi, movies on TV.

And. Booked airtickets for a UK holiday in September.

And then...

Saturday he went to see Okaasan.
He came home crushed.
After two visits when she seemed to be happy and good. This time, she was angry, shouting and NOT happy. The nurses warned him before they met, but he was still shocked.
He really feels it. To see his mum like this. Wondering if she will ever be "herself" again. Will she ever be able to come home and be happy with us?

For the first time we talked about what will happen if she DOESN'T come home. She will have to be in a care home. And us? We live in a big old house that is expensive for just the two of us. Questions about the future - should I move my English school here? Should we explore Airbnb?

And then....

The real estate agent called.
There is a buyer for the family house in Saitama. A good enough price. If it all goes through Okaasan will need to know about the brother "moving to somewhere smaller"/house sale etc and sign the documents to sell.
While we thought that would be possible for Okaasan to understand and agree to one month ago. Now is totally different. What timing....

Now, if she is told her house is being sold? What would that do to her mental state? Would she understand and be able to really make a decision? It doesn't sound promising. It's unfair to make the house buyers wait too long.

Discussions are taking place...DS may have to consult a lawyer to get the legal right to make decisions on behalf of his mum. Another complication he doesn't need in his brain right now. I am being gentle and supportive to him. Poor guy.

Friday, 16 June 2017

Tasting freedom...

Ok.

I can confess here: I am soooo happy Okaasan isn't here.

There. I said it.

I am beginning to enjoy and luxuriate in the freedom of being just a couple again. After so many years.

There is a lightness to home life. We are playful with eachother. The schedule of life - specially meal times and contents - has relaxed. My God - we are even going out after work and doing things.

It's a new norm.

And I am loving it.

Yesterday DS went to visit Okaasan and I had a sudden fear that the hospital would say she was fine to come home and we would have yet another weekend of tension and care work. But no - he came back and said she seemed fine, but that she wouldn't be coming home so soon....in fact the hospital originally had said one month...ONE MONTH???!!!! - whatever - not this weekend.

My mind is giddy with possibilities. Walking! Cycling! Flowers! Eating. Pokemon special event! Is my knee strong enough to load the kayak on the car roof and go out to the lake?? All of that.

You don't realize how trapped you are/feel until the bounds are loosened and release. We have lived with Okaasan for years now, it's become our normal life - with only a night or two of break - and now I am REALLY beginning to relax. Carers need a break, really.

I am careful, though, not to express my happiness too much with Dear Son - after all this is his mum, and she is in a hospital away from home. He has sole responsibility to make decisions. I am lucky that he trusts me enough to talk to me about the situation - but the decisions are his to make.

Hopefully the medicine will give Okaasan a new level of serenity and she can come home again. And if she does come home - now she and we can understand that it is possible for her to stay in another place - so maybe short stay breaks for all of us are an option in the future. Or - maybe she can't come back home and we have to find a care home for her.

All of that is to come. For now - I am planning a weekend of relaxing. Have a nice one everyone :-)

Wednesday, 14 June 2017

Happy..................

LISTEN to those lyrics!
Okaasan is HAPPY!!!!!
Dear Son reports from the hospital that she is smiling and calm and HAPPY!
He went and sat with her for an hour, watched her eat her lunch.
Chatted about things....or listened to her chatting about things.

Amazingly. She was happy.

So, we are happy. And we aren't on meds.

Is this possible in just 24 hours? Was this just a lucky moment that when he went she was on a high? He said she seemed naturally happy, not manically so. She said the last time they'd met was maybe downtown...she knew who he was.

Really wonderful. 

He met her in a meeting room of the hospital and the nurse brought her in a wheel chair. She wasn't allowed to have one of her magazines (too much outside stimulation) and she isn't allowed TV (in fact we did notice at the weekend that Tv seemed to enrage her even more, "WHY are those children working at 7 am?? WHY?").

So. There we are. The meds are helping. Thankgoodness for modern medicines.

We had a nice calm after work evening. I weeded the garden. He watched football on TV. The cats lounged on warm concrete. We ate dinner together in the kitchen....I take Okaasan's chair at the table now (work out the symbolism of that...) and then after some TV we slept. It was nice  and normal.

Meanwhile.

***WOW!! You lot - blog readers.
Thankyou so much for all the messages and support. They kept popping up on my e mail feed all day on my smartphone. Gave me lots of warm fuzzy feelings. Thankyou - I know there ARE people reading this blog, but at times like this past week I really understand it.***

What happens from now on, we'll see.
But several barriers have been broken - specially with Dear Son and his thinking. He has accepted outside help from care manager and social worker, and doctors. He has accepted that medicine maybe has a role to play in his mum's care. All of that is quite a lot. He is his mum's son, her attitudes to hospitals, doctors and medicine have inevitably influenced him.

But now. Medicine and a hospital are maybe helping.

HAPPY!!!!!!
๐Ÿ™‹

Tuesday, 13 June 2017

Guilt

In Japan. You know who is in and out by the shoes in the entrance hall.
I came home yesterday to find Okaasan's slippers.

So. I knew she was out. Gone. Not at home in her room raging at the curtains, us, the ceiling, the Tv, the blanket, the water.....

The house was empty and quiet. I changed into my home clothes, opened a beer, fed the cats and cut the lawn.

Dear Son came home soon after, looking exhausted and emotional.

Okaasan is now in a mental health hospital. In a locked room. With a restraint on the bed, so she doesn't get up and fall in the night. On drugs to try and level out  the anger at us and the world.

And we feel awful about this. Guilt.
What have we done to Okaasan? Is this the best thing to do? Really?

Apparently, an elderly care home won't accept her at the moment because of the anger issues. Consideration for other residents and staff. If she calms down enough to be with other people then admission to a care home is possible - probably a private room with staff looking after her. Or home? Maybe.

But this was the next stage advice from social worker, day service manager and the doctor at the orthopedic hospital - that Okaasan's fury needs medication, and then once she is manageable another stage of care home or real home can be considered.

Dear Son took his mum yesterday. They had a short joint interview with the doctor, in which Okaasan denied ever being in the orthopedic hospital for 3 weeks etc and waffled on about going downtown alone every day. Then a nurse took Okaasan gently away and Dear Son talked to the doctor alone about their suggested program. To keep her at the hospital, try some dementia drugs to find a good level for her.....a level which will let her be easier to care for. 

Finally, after years of ignoring the drugs options. Dear Son is accepting that drugs may help his mum.

He was shocked to be in a mental health hospital. However new and bright it was. Many many locked doors. Warnings about not bringing sharp objects, outside food...restricted visiting hours, questions about who was allowed to visit. All of that. Me too - I have images of One Flew Over the Cuckoo's Nest.

We went and ate soup curry near home. We went to a local bar. We drank and talked quietly. Both just shocked, and feeling sad and guilty.

"It's like a pet that people throw away. That's how I feel. I think I should have done better for her" said Dear Son.

And I agreed. I tried to gently soothe his feelings by saying how much we have done for Okaasan over the past 10 years. So many things we HAVE done right. To make her happy here with us. How we have taken the right decisions along the way...and in the past 3-4 weeks.

She needed to go to hospital for the back.
She needed to stay quiet in a corset in bed.
The hospital has no mental health care for patients.
We tried to have her at home.
We tried to protect her physically, and mentally.
We tried. 
 

We have tried to look after her at home. It isn't possible now. That isn't our fault. It's the sickness of dementia that has taken over her mind. If someone is injured or sick, you try to get help - professional help. And that's what we are doing.

We tell ourselves this. But we don't feel it.

Sunday, 11 June 2017

The weekend

Where do I begin?

Um.

No murders here.

That's good.

A lot of alcohol has been consumed. Necessary.

Short story: 

Saturday she seemed to calm down. Kind of comatose, actually. Let Dear Son lead her and direct her every move. A few flare ups. But basically subdued. He was amazing. A day of nursing. Always always the kind, gentle explaining voice, the helpful agreement. God. What a man. I hope he nurses me like this, if I need it.

Sunday? Today. Bad and good. The morning was all rage and fury.Sullen. Shouting.
Then mid-afternoon completely normal. Polite, responsive. Smiled.

Currently - 4 pm on Sunday. Raging and angry again.

Physically she is so so. We couldn't leave her for a day alone in the house while we work. That's for sure. She can stand up from the bed. But walking isn't good at all.

Food - she actually came to the table and ate with us on Saturday night. Didn't talk or respond much. But ate. Another meal she accepted from a plate held near her nose in bed. Other times she angrily refused.

So.
Dear Son has slept on the floor in her room. He and I have taken turns sitting in the kitchen to be within shouting response or about-to-stand response distance.

It feels as if - the past 8-9 years was a prelude to all of this. The Main Event. NOW we certainly have dementia in the home. Unpredictable and often nasty and tiring. What came before was often funny/weird and  sort of predictable to us.
This isn't.
We are both tiptoeing around our own home, sometimes literally. And we are making peace offerings try and make Okaasan happy and calm. Choosing food and snacks she might like. Arranging things just so, as she usually likes them,. Worrying about the lost button on the pajamas, and whether she will rage about it, Worrying about  the heat/light/curtain/cup/chopsticks.

It's all fluff really. I feel at this stage in her brain - if she wants to find fault and be stressed about something she will be. We can try and make her environment as perfect as possible, but nothing will change the fact that a huge shift has taken place after 3 weeks of hospital.

Feel depressed. That's me. And I expect him.

We are going to talk somehow tonight. Probably an In the Utility Room Summit. In whispers...

To start the process of getting her into a Care Home. To start the process of getting her on medication for the dementia (will he finally accept that?). To ask the day care manager tomorrow morning to help us.

Cos we need it.

Tomorrow is Monday and I have a week or work ahead. As a bike taxi driver he can cancel another week or work. His NPO boss has family members  with dementia herself, so she understands. But he can't sit in the kitchen every day with the Dementia Tyrant waiting to explode.

This afternoon I sent him out for a walk. To have a brain rest.
He came home from the alcohol shop with a box of red wine....


Saturday, 10 June 2017

Home. And not happy.

Coming home.
Just that phrase conjures up such a nice, happy feeling.

Okaasan coming home from hospital wasn't.

She is alternatively silent/angry/whiney...very few moments of lighter mood.
She is totally focused on Dear Son. I am beyond the pale.
She hardly moves her body. Sits or slumps. Doesn't ease back pain herself by shifting weight. Just exists inside her body, until DS suggests a different position.

Her walking and standing is better. But shaky. I don't think DS would leave her alone on Monday or Tuesday. It doesn't look that strong.

But, more than the physical - is the mental situation. 
Incapable, dependent unhappiness....
Watches Tv a bit, without any sign that it is giving her pleasure.
Lots of lying down with eyes closed and crying out with real or imagined pains and complaints about too dark! too bright! too cold! too hot!

Dear Son is a saint. He is endlessly trying to respond to every passing request.

Coming out of hospital was ok. A silent drive home.

Then lunch.

We tried to time lunch so she would be in the kitchen sitting when the Day Care Manager and the rent-a-bed people arrived.
She was. But the timing made her angry:
"Who are you? Why are you here? This is very rude! In Japan you don't go to someone's house during mealtime? Why are you here?!!!" all said with real venom...

It was a big performance. Moving the sofa, cleaning the opened up space, building the bed. THREE bed charity people, plus Day care Manager and us....it was, inevitably, a big noisy confusing time. Okaasan sat in the kitchen watching it all with anger...while the day care lady tried to calm her down with chitchat.
Trying to arrange the bed, with blankets, cushions etc....TV view.....

There was also an hour or two of endless fuss about the windows and curtains, wind and sunshine...Okaasan shouting at us and waving a back scratcher. Refusing MY help and screaming for her son.....finally he helped her stand up and walked her to the windows so she could see up close that what she wanted was structurally impossible with this house and these windows. It was the best way to calm her.

Me. The English woman.....
She has told him several times that my messy, dirty kitchen is bad and that I am trying to kill her.

Pretty ironic from a woman who hasn't cleaned anything in years, who is in a room I spent 2 weeks cleaning....

That's a joke. I know it's her dementia and paranoia.

But I also wonder....DOES she have some memory of the kitchen fall a month ago? Some memory or understanding that maybe it was the car mats left on the carpet that MAYBE tripped her up?

It is my guilt. We don't know how she fell. But the only thing I could see in the kitchen that evening was the car mats I'd left near the kitchen door. I wondered if she had tripped over them. Dear Son has told me endlessly not to dwell on that - because he says he knew about the mats too, and maybe it wasn't the mats etc
But still. It is unnerving now to have her talking about MY dirty kitchen. And blaming me for her fall....and pain and unhappiness.

My kitchen IS dirty. I know. I kind of don't care. And luckily DS doesn't either. We aren't spic and span types.

Anyway. We've agreed to stop talking about falling down/back bones/hospital stay - just respond to her talk of pain as a pain of old age.....and not keep reminding her of a fall and much hated hospital.

And so. Here we are. Another weekend of rain and stress at home.

Dear Son slept on the floor of Okaasan's room. Got up 3 times in the night.
We are taking turns to sit in the kitchen and watch her and respond to her complaints and needs.

There is painkiller medicine. There is calming down medicine.

The day care manager saw the whole situation very well when she was here for the bed installation. She has recommended that Okaasan gets a new mental assessment, that she is put on medication for the dementia etc - that if we can't cope here at home she will activate the Move to a Care Home idea...it will all take time....

And so. We try to get thru this weekend. And see if Okaasan calms down, gets more independent in her environment.

If.

If.

if.

๐Ÿ˜ฐ




Friday, 9 June 2017

Care....home.....


..............

..................................................

.............................................................................















Here.
WE are the Care Home.
Here...at home.

How much can change in 24 hours....

Wednesday they are talking about how she can't walk safely yet and will need monitoring and mental care...Thursday the doctors are saying : "It's a miracle! She can walk! She can climb a few steps! Return to Sender!"

And so. She is coming home.

It's good, for Okaasan. It's um.....um....for us.

Actually, when Dear Son mailed me lunchtime I said: "Bollocks. Bang goes another weekend. "

And then I tried to think positively and kindly.

We are going to the hospital this morning to fetch her. We are renting a bed for her to sleep on, because getting up and down from her usual place on the carpet carries more risk for falls. So we'll have to rearrange furniture (which she will love...NOT).

And so.
That's what is happening....

You really can't say this blog is boring, can you! Bit like American or British politics. Look away  for a moment and huge seismic shifts have happened.

Anyway. Bollocks. 
Let the caring begin.

* Day Care Manager and Dear Son have agreed that if this doesn't work out then the hunt for a short stay unit will resume. But we are all hoping it won't come to that. Hoping she can resume safe/doable life at home. And not savage our ankles.

Thursday, 8 June 2017

Looking for a caring place

Another stage.....

The Day Care Manager/Hospital/Dear Son have agreed that Okaasan should be moved to a care facility of some kind for short stay and physical therapy to get her walking safely and independently again. So she can come home.

The hospital wants her out.
We can't cope at home with her- physically or mentally.

So. Another stage.

I feel sorry for her. I really do. I'm surprised at myself. Thought I'd be skipping around the house, feeling free and eating cheese fondue.

Instead I feel sad that her life has changed so much. A month ago she was living happily in her own room, with her things around her. Going out for a little walk late afternoon to familiar shops. Having meals at the kitchen table while family chatted on about things. Feeling settled.

Now. All different after that fall May 13th.....

I haven't seen her since she returned to hospital on Sunday, but DS has been at the hospital every day. Ironically, he said that yesterday she was very chirpy and told him many times all about the gym/community center she was once a member of - where you could sign up for many kinds of exercise! Maybe a memory triggered by being in the hospital's physio room? Anyway, a happy memory.

So. We wait to see if the Day Care Manager can find Okaasan a room in a care unit where the staff can do more to help a lady with dementia feel happy, while doing all the muscle building necessary to get her walking safely again.

I'm already wondering how to make her room in this place familiar and welcoming. What things she might need to see to feel it is a good place. The little desk calendar, the notebooks, the red blanket....

Monday, 5 June 2017

Back to hospital

Just a quick update, before I head off for work.

Okaasan is back at hospital. Same bed. same room room. With nurses under instructions not to force her to eat food she doesn't want, and to try and just mildly agree with things she says.
If they can....

At the end of all that - getting her back to the hospital was actually very easy.

She was dozing on the sofa at 1 pm and I felt bad that we were about to unsuspectingly rip her out of comfort back to the place of uncertainty. Even though for her own good. Like when the cat is snoozing in the closet and I am tiptoeing around to prepare the cat carrier in another room so he doesn't know the a vet visit is a coming.

Just before the wheelchair taxi arrived Dear Son got Okaasan alert and took her to the toilet. She was there ages...leaving the taxi driver and Dear Son hanging around in the entrance hall...and then...he helped her walk out..oh and "turn right!" and "sit here"...and "put on this coat" and "here is a nice driver man" and "let's go!"...she was out from the toilet and into a wheelchair and out on the road to hospital without a fight. Amazing.

The nurses said she will need at least another week of hospital to get strong enough for solo walking. She IS really shaky and not balanced. The day care manager telephoned...she and dear son will discuss things...whether a short stay unit could be used....or not.

WE were knackered. And I had the extra emotional toll of seeing the events in London on my TV screen. I was born in London. It's my city. I had dinner with a friend near London Bridge after the Olympics....I feel numb about it all.

And so.

We certainly couldn't have Okaasan living with us if she was like Saturday's condition. Impossible. For the first time Dear Son actually said that. He saw the reality. He talked about her living in a care home.

But we really really believe that the Saturday condition was an extreme. She isn't that bad, yet. We hope that she can get strong physically and come home and mentally enjoy life again with us.

We do hope that. I know that is shades of an abuse victim saying: he didn't mean it, he was just drunk and angry. But we don't believe Okaasan is that bad yet. This whole hospital experience is effecting her and will make her dementia worse. But we think she will retutn to a calm state.

But we are exhausted.

And now I am going to work....

* Thankyou for many messages. I can't reply to all. Just no time and energy. But thankyou .:-)

Sunday, 4 June 2017

On watch. In turns.

One hour each in the kitchen - at hand to make sure Okaasan doesn't fall off the sofa, stand up...throw a tantrum. On watch to respond to her ever-changing needs and anger level.

Yesterday morning was definitely worse. Late afternoon she was mixing querulous with bursts of anger. Occasional laughs. Then stressy hand flapping and shouting.

And I am emerging as the focus of negative feeling.

"That English woman..." - who doesn't wipe things down properly, doesn't know Japanese way...doesn't...

And one very odd conversation about "Japanese people don't wear aprons at mealtimes"...from a woman who comes from a culture and generation where women certainly DO wear an apron at mealtimes. Okaasan's absolute routine ever since she has lived here, and back into the mists of time, has been to put on her apron when sitting down to eat.
But now? What is that? Why do you want me to wear it? Japanese people don't do this!

It all has started to come out. Paranoia.
Hate cats
Is this water safe to drink?
Maybe somebody pushed me? Did I fall naturally?

And place confusion.
Where is this? Where are we going to eat?  Do we live here? Are those my clothes? Are we going home soon?

Dear Son is keeping his patience so far.

He and I have had long conversations about options and what-is-best. I think the best option is that she stays at home and he and day care support try to manage this situation into the coming week. Second option is to get her into a short stay unit. Third option is go back to hospital.

Apparently the short stay option isn't that easy right away. Okaasan's Welfare Care level is too low to be able to activate that option immediately. She is Level 1. That's the level based on the interview with the psychologist and home appraisal by day care manager. Obviously her dementia level has shot up (down?) several levels this week, and if she was appraised now it would be different.

Dear Son is for the back-to-hospital option. Even though he recognises it won't be good for her mentally, at all. Physically she isn't so great. This morning she seems to have more back pain. Wheelchair to the toilet again.
Meanwhile HIS back pain is increasing because he is hauling her around....

We are taking turns to be on watch.
Sitting in the kitchen within sight and shout range of Okaasan.
I sit and read a book. Look at my smartphone. He relaxes upstairs with TV.
Then an hour later we swap - he sits in the kitchen watching football on his smartphone and I sit upstairs with Netflix.

He slept again on the floor of her room and took her to the toilet in the night.

Today?
We'll try to do lunch...aiming for a friendly, family feeling at the kitchen table. Which is nearly impossible with Okaasan complaining about the food size/type/arrangement. I keep my head down and just eat. let Dear Son do all the soothing agreeing and gentle explaining.

After lunch.....the major task of getting her BACK to hospital.
Special wheel chair taxi will come at 2 pm.
We've agreed to try and tell Okaasan "oh, let's go out together, let's use the wheelchair...let's take this taxi..." and NOT, initially make it Return to Hospital. Until that is inevitable.

I fear an actual physical situation with her resisting him trying to get her into a wheelchair and shouting and anger.

He feels he must follow the hospital system. Return her there. Talk to the nursing staff etc Then day care manager to tomorrow.

It's the Japanese way. To accept system and authority. Of course, it wouldn't be my way as an English woman....if this was my parent I'd be calling the hospital and TELLING them that my parent was going to stay here at home. Then hassling the care manager Monday morning to give me a) full care worker support for home care or b) get a short stay place ASP.

But it isn't England. It isn't my parent. I try to imagine what it would be like if this was Mum or Dad, or my wonderful step-mum shouting and attacking verbally like this. How I would feel. It must be so hard for Dear Son.

I have a protective non-family coat. I react as a human to the anger and rudeness. But without the emotion.


So. Okaasan will - maybe - go back to hospital this afternoon.

And yes. We are planning to let out our whole loada stress with beer and meat/soup curry for dinner. Looong weekend. It's rained and been cold too.....going to work next week looks like happiness on the horizon...


Saturday, 3 June 2017

Volcano in the living room

Bubbling, bubbling...erupting...throwing out rocks...hot...molten...simmering again...bubbling...spewing forth....raging...simmering...

ALL of the above. Often in the space of a few minutes.
We are on volcano watch this weekend.

Haaaaaaaaaaaaaaaaaaaaaaaaaaaaa. 

Physically? Okaasan IS getting better. We had to use the wheelchair last night. But then she started being able to walk and stand - in a kind of two-step with Dear Patient Son. They look like judoists grappling. She is holding onto his arms as he backs slowly in front of her and she shuffles forward.
She has got to the toilet a few times with help.

She slept on the sofa, with a coffee table upended next to it to stop her slipping onto the floor. And her Dear Very Patient Son sleeping on the carpet nearby.

We had family dinner. She ate well. Looked soooo sleepy and was pretty silent. Maybe happy to be back.

"I went to hospital? When? Why?" was probably the stunner of the evening. Two weeks plus of experience gone from her memory. 

But the impact of those two weeks is right here and raw. 
Fury. tetchy, fractious, scolding, anger - at everything.

MOVE that clothes rack!
Why is that table there?
Why is that wheelchair here?
What's that?
Are those socks clean?
That man on TV.....

All of this with raised voice and anger.

It's very, very wearing. And she only came back yesterday...we are hoping this will subside. Apparently the hospital said she was more aggressive in the mornings.

Oh God we hope so. And we hope it gets less. If THIS is the new norm? It's like the dementia has scaled up by several notches.

And then.
She let us change her pajamas and diapers without too much fuss. Like a toddler - she let Dear Son kneel in front of her and she held onto his shoulders. I was behind her as we took off the clothing, she obediently lifted one foot at a time to let us undress and dress her - all the time chatting on about the name plate of the neighbor's house she could see thru the curtains... 

And 20 minutes later - she took off the hospital corset  and threw it on the floor...."I KNOW what is best for my body? What hospital? What doctor?" 

And then polite again; "thankyou for the flower. That's pretty". 

"Why is that piece of paper on the table? Is it mine? What is that cup?" with cold fury voice.


We are exhausted. It's only 10 am on Saturday.
Onwards into our weekend.

Thursday, 1 June 2017

Coming home.....for...???

Yay!
Okaasan will come home tomorrow.
And stay until Sunday afternoon. Then go back to hospital.

Maybe.

Big maybe....

Lots of negotiations between DS, hospital and day care manager. We have a cute, compact wheelchair and table, we have a special taxi booked, the carpet is back from dry cleaning....the clothes washed, every surface cleaned.
And it'll be a special welcome home dinner of fish.

Today at the hospital she walked all round the nurse station - twice! - with a stroller....an amazing change in ability. If she can do that, she can get to the toilet at home and she'll be fine.

We don't really want her to go back to hospital...but that's the plan, so the doctor can see her again on Monday. If she stays at home day service can arrange some physio care....

It's all stations GO.

We hope.

Amazing how she has made a great progress in physical ability. I wonder if she suddenly understood that demonstrating ability was the key to getting out? Before that maybe she didn't bother to stand or try - just said "Yes, of course I can stand" to the physio. Then realized that demonstrating that was her key to freedom?

AND what will happen on Sunday when she understands she has to go back to hospital?

Deep breath....we are heading into the weekend...